Mousy is with a fever. It began at the physio therapy and at night got worse.
It seems that when good things happen we cant talk about them because we jinx them.
quarta-feira, 13 de janeiro de 2010
terça-feira, 12 de janeiro de 2010
News about Mousy
News
Mousy went to the doctor and everything was fine. He is gaining weight and he is now at a physical age of 6 months (percentile 50).
He is sleeping well, eating well and has a new hair style. He also has a thing to put on his hands when he goes to sleep, that maintain his wrists and hands open. It is for controlling the spasticity.
Mousy went to the doctor and everything was fine. He is gaining weight and he is now at a physical age of 6 months (percentile 50).
He is sleeping well, eating well and has a new hair style. He also has a thing to put on his hands when he goes to sleep, that maintain his wrists and hands open. It is for controlling the spasticity.
terça-feira, 29 de dezembro de 2009
Memories
Mousy and Lissencephaly
Do you know that smell of dirty diaper or the smell that the baby have after he burps? Or that anoing sound he makes when we dont do what he wants? And that beautiful smiles he makes when he feel us around or we kiss him? Or the "i want to go to your lap" cry? How can we preserve that, like a photo or a video? How can we save the smells and the sensations that only we know our childes gave to us? How can we live the rest of our lives without trying this again after they gain their wings? How will we survive to their departure? I know for sure that i'll miss every single smelly diaper, every single cry, every single night without sleep...i already do. I know sometimes i say that i'm going crazy and that i'm tired of all this, but they are things in that moment and that pass right away..._Mousy smiles and all goes away. I love him so much...cant imagine what life will be without him.
Do you know that smell of dirty diaper or the smell that the baby have after he burps? Or that anoing sound he makes when we dont do what he wants? And that beautiful smiles he makes when he feel us around or we kiss him? Or the "i want to go to your lap" cry? How can we preserve that, like a photo or a video? How can we save the smells and the sensations that only we know our childes gave to us? How can we live the rest of our lives without trying this again after they gain their wings? How will we survive to their departure? I know for sure that i'll miss every single smelly diaper, every single cry, every single night without sleep...i already do. I know sometimes i say that i'm going crazy and that i'm tired of all this, but they are things in that moment and that pass right away..._Mousy smiles and all goes away. I love him so much...cant imagine what life will be without him.
domingo, 27 de dezembro de 2009
Christmas and gastroenteritis
Mousy and Lissencephaly
Mousy is doing fine during the day, but the nights are very hard. The IS dont let him sleep, so sometimes we need to use the SOS meds.
But, beside that, Mousy is fine. He recieved many gifts in Christmas, 2 soft blankets, a music box that project stars in the ceiling, among others. And from the day care, Mousy brought a portrait that has a very cute photo.
Now we are with a gastroenteritis...first me, then dad...hope it doesnt strike Mousy.
Mousy is doing fine during the day, but the nights are very hard. The IS dont let him sleep, so sometimes we need to use the SOS meds.
But, beside that, Mousy is fine. He recieved many gifts in Christmas, 2 soft blankets, a music box that project stars in the ceiling, among others. And from the day care, Mousy brought a portrait that has a very cute photo.
Now we are with a gastroenteritis...first me, then dad...hope it doesnt strike Mousy.
terça-feira, 22 de dezembro de 2009
quinta-feira, 17 de dezembro de 2009
Bad dreams
Mousy and Lissencephaly
Last night i had a very strange dream. I dream that i was walking with Mousy and stopped to do something. I toke my eyes off him 10 seconds and he desaperes and then, boom, the cenary change. I was near water but still looking for him. Then i jump into the water and he was drowning. I saved him.
I think that i'm dreaming this things because a "little friend" of our lissencephaly group died recently and i'm working more outside our house. I sincerely think that i'm the only person that knows how to take care of him (i know that this is very neurotic) and am afraid that something happens if i'm not with him...maybe is because of this that i'm having this strange dream.
Last night i had a very strange dream. I dream that i was walking with Mousy and stopped to do something. I toke my eyes off him 10 seconds and he desaperes and then, boom, the cenary change. I was near water but still looking for him. Then i jump into the water and he was drowning. I saved him.
I think that i'm dreaming this things because a "little friend" of our lissencephaly group died recently and i'm working more outside our house. I sincerely think that i'm the only person that knows how to take care of him (i know that this is very neurotic) and am afraid that something happens if i'm not with him...maybe is because of this that i'm having this strange dream.
segunda-feira, 9 de novembro de 2009
Mousy and Lissencephaly---finally
So, another problem resolved...finally!!!
Mousy has been fa-bu-lous! Only smiles and coo and more smiles. Those kind of smiles that are totally selfless, warm, loving, naive. This is the best present and reward i can have from overcome this obstacle.
Mousy has been fa-bu-lous! Only smiles and coo and more smiles. Those kind of smiles that are totally selfless, warm, loving, naive. This is the best present and reward i can have from overcome this obstacle.
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