Hospital

Mousy is at the hospital with a pneumonia. Needs oxigen and almost was all blue.
Maybe tommorow we go home, with oxigen and a machine to measure oxigen levels.
Pray for us.

Picking up photos and writing a paper
If being multi-task provoques Alzeimer, i'm in the first row
Maybe is better that way...



We went to USA to see Dr. Dobyns.

National TV

Well, we were on National television on last 6 of may. It went well and it was fun. We are going to get the video and then put it here for you to see with subtitles.

Mousy is fine. He is very happy and seizure free.

For now, we are counting the days to be with Dr. Dobyns and trying to put toghether all the €€€ for it.

A promise made

I've made you a promise of tell you all about the work i'm doing...please be pacient.

We are going on National TV - RTP1 channel on the 6th of may.

News

Well...we've been far from the "international" blog's. Many work, many problems, many stress.

Summarizing:

-After Mousy "made" one year (one year of diagnosis...on the 27th of january, mousy was born and a beautifull boy called L. had past away) the ghost of "death around the corner" was gone. Now is much more easy to go throught the day without panic with a cof or a small fever. Yes, we still panic, but it's different...dont know if i made myself clear...


- Our beloved puppy died with 12 years old...we miss her so much...Mousy feels that something is not right but dont know if he understand what. Me...i havent cryied yet. Our puppy was my companion through the college (she also had the degree...she went to the classes with me)...


- Mousy dont has any doctor appointment since december (when he went to the ER)...dont know if it is good. Why doctors dont want to know about him? So we are trying to find a new neurologist.


- We knew that Dr Dobyns is leaving Chicago and is booked until he is going to the new hospital. So our trip to chicago was cancel


- Now we are thinking about going to the convention...but we dont have any certains that Dr. dobyns will be our doctor in the convention...so we dont know what to do...

The last normal day

Today is the anniversary of the last day that Mousy was a "normal" boy. Unfortunatly i cant remember anything about it. I just remember that it was sunday. Dont know what we did, if we went out for a walk, if we stayied at home and play...i cant remember anything.

I thought about going to our photo album and see if there is any picture of that day, but the last one is at 24/1/2009 at 8pm (saturday). What did we do? I really cant remember...how could i forget what Mousy made on his last day as a "normal" kid? What new things he did, how many smiles he made, if he made any new smile, if he was ok, what we played...i just cant remember...

Jinx

Mousy is with a fever. It began at the physio therapy and at night got worse.
It seems that when good things happen we cant talk about them because we jinx them.

News about Mousy

News


Mousy went to the doctor and everything was fine. He is gaining weight and he is now at a physical age of 6 months (percentile 50).
He is sleeping well, eating well and has a new hair style. He also has a thing to put on his hands when he goes to sleep, that maintain his wrists and hands open. It is for controlling the spasticity.